About Me

Hello.

This blog is new, and hopefully overtime will be more active.

I am in my late twenties now, and feel as if I am in my 50s. My list of medical issues is long, but here are the main ones:

Ehlers-Danlos Syndrome (a connective tissue disorder affecting the collagen in the body; causes systemic problems, including but not limited to dislocations, stretchy and/or velvety skin, hyperextending joints, chronic pain, chronic fatigue, gut issues, etc.)

Sjogren’s Syndrome (an autoimmune disorder affecting the moisture glands in the body)

Herniated discs (so far two, still awaiting MRIs for the rest of my back and neck.)

Neuropathy

Vocal Cord Dysfunction (vocal cords don’t work as well as they should; kind of ‘lazy’ and makes the voice sound monotone and low.)

PCOS (Polycystic Ovarian Syndrome)

Dysautonomia

Sleep Apnea

High blood pressure; heart palpitations

IBS

hypersensitive skin

Psoriasis

Cerebellar Ectopia (Possible Chiari Malformation)

Not-yet identified thyroid issue

Most of these things have secondary issues to them. I was diagnosed with EDS just a couple of years ago, and things snowballed from there. I now own a wheelchair, walker, cane, braces, and a permanent handicap placard, though I haven’t had to use all of them yet.

One thing to note, in EDS, our collagen is faulty. It breaks down and our skin, organs, joints, ligaments, etc., can stretch beyond normal limits. When the average person ages, their collagen also breaks down. In essence, those with EDS start the aging process decades earlier than most, normally around mid-twenties, mid-thirties or after childbirth. To read more about EDS, see the links page.

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