Welcome.

Over the last year, I have been diagnosed with a dozen illnesses, most of them chronic, some I have had for years undiagnosed, some recent as a result of the others. My illnesses, while still somewhat new and only moderately severe, have caused a whole rollercoaster of events and changes in my life.

As this is my initial post, I will just start with background information. Though I prefer to keep this anonymous for now, I will tell you a little bit about myself to better understand my future posts.

I am in my late 20s. I am a wife, a mother, a sister, a veteran, a friend, a dreamer. I grew up in a middle class home, divorced and remarried parents and a happy life. At 21, I joined the military. While in the military, I was nearly constantly in the clinic with joint pain, coughing, migraines, stomach pain, etc. Each was treated separately with very little results. After having my children, I left the military. A year later I was diagnosed with Ehlers-Danlos Syndrome (EDS). It is a connective tissue disorder that affects pretty much every system in the body in some way. Generally, hyperextension of the joints, joint pain, stretchy skin, stomach issues, aortic dilation, velvety skin, odd scarring, and more. Symptoms very greatly from person to person. One person may be highly functioning and in little pain, while the next is in a wheelchair and swallowing down pain pills.
My EDS is fairly mild (in my non-professional opinion). However, due to this diagnosis, I have also been diagnosed with the following within the last year during routing testing from EDS diagnosis: High Blood Pressure, Obstructive Sleep Apnea, Sjogren’s Syndrome, Polyneuropathy, Herniated discs, Irritable Bowel Syndrome, Dry skin, Dry/Damaged Eyes, Chronic Fatigue Syndrome, and more minor things. Additionally, we were made aware of my child’s severe condition and were able to get him the surgery he needed.

How do I keep going? Endurance and Optimism.

Stay tuned as I reveal more.

E&O

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